Here's Bottom Line Information to save you time and money:
Want answers now? Tired of wondering if you or a loved one has hereditary hemochromatosis?
Find answers quickly and privately through these "direct access" companies:
DNA genetic testing/Home test kits/Painless:
Best bargain: www.23andme.com ($99/tests three HH mutations using saliva sample)
Fastest: www.kimballgenetics.com (call for price/1 day results//tests 2 mutations using cheek cells)
Iron storage levels (serum iron, TIBC, & serum ferritin):
(Use for diagnosis or monitoring diagnosed patient)
www.healthcheckusa.com (1-800-929-2044) No doctor's order / you use local lab /needle draw
If you are searching for a diagnosis (or to rule out hemochromatosis), these tests will
help you get the answers you need. AHS would be pleased to discuss your results with you.
(AHS does not receive any funding from these companies for referring patients to them).
Please note that these labs are not a substitute for professional medical care but can provide a quick, confidential, and accurate assessment of your iron storage levels and
your DNA genetic status which you can share with your doctor.
If you have any questions about these labs please call AHS at: 407-829-4488.
It all started 15 years ago...
Josephine Bogie Thomas
She was the inspiration for founding the
American Hemochromatosis Society
Sandra Thomas, Founder/President
15th Anniversary of Service to the Public!!
31, 1998 to March 31, 2013
(See the President's Message at the bottom
of the page for a history of AHS)
you for putting your trust in the American
Hemochromatosis Society (AHS)
Visit us (and "Like" us) on Facebook!!!!
Join the 1,000+ visitors to our page on Facebook!
AHS New Address!!:
(In the "old days" (circa 1998), the American Hemochromatosis Society (AHS) received and sent out a lot of mail. Now, with the Internet and Facebook, we get few requests for information by mail, and we rarely use the postal service. Nevertheless, we do have an address, and that address has now been changed to:
American Hemochromatosis Society (AHS)
P.O. Box 950871
Lake Mary, Florida 32795-0871
Most communcation with our society is through email, (firstname.lastname@example.org), or facebook (www.facebook.com/HereditaryHemochromatosis), or telephone, 407-829-4488.
We're here to help in any way we can.
Take a trip down memory lane... Old AHS Archives!!
In Loving Memory...
The American Hemochromatosis Society extends its sincere sympathy
to the family and friends of
(See the full obituaries in the Memorial Photo Gallery)
International BioIron Society(IBIS)
For more information: www.bioiron.org
Josephine Bogie Thomas (left) & her daughter, Sandra Thomas, on the
balcony of their apartment in North Hills, Pittsburgh, Pennsylvania
in November 1998, six months before Josephine died from hereditary hemochromatosis on May 13th, 1999.
AHS Remembers 6 Years Later...August 27, 2007 to August 27, 2013
Board member and major benefactor of the
American Hemochromatosis Society
October 5, 1914 to August
Dad, you are missed every day. You did so much to help the cause for awareness of
hereditary hemochromatosis, the disease which took your dear wife, Josephine, from you. You cared for her tenderly, and stood by her without exception, tirelessly,
patiently, you were there for her from diagnosis in 1983 to her death in 1999. You set
a wonderful example of devotion and dedication. One which I easily and gladly followed when it was your turn to face the final chapter of your life. You and mom were the best, and are dearly missed. Thank you for all of the timeless life lessons you taught me.
(Joe was the father of AHS president
and founder, Sandra Thomas and husband of 59 years to
Josephine Bogie Thomas, inspiration for the founding of this organization)
Joseph Burghard Thomas Obituary
See In Memoriam tribute in Orlando Sentinel on August 27, 2013
Sandra Thomas and her father, Joe B. Thomas
Books on Hemochromatosis....
Guide to Hemochromatosis
Guide to Hemochromatosis, which is chock full of important information about hemochromatosis, can be ordered through www.amazon.com
or any major book store, or go to: www.irondisorders.org
Guidebook on Hereditary Hemochromatosis
Medifocus has published an excellent rescource and information
guide for patients and families concerning Hereditary
the AHS Neonatal Hemochromatosis Information Center (NH) Site
(left) has Neonatal Hemochromatosis (NH).
AHS sponsors a web site for this rare newborn
iron disease. Learn more about NH in newborns
and the exciting new treatment which offers new
hope for pregnant women who have already had an
NH baby in the past.
have an NH baby, please email or call us at 407-829-4488
so you aren't going through this experience alone.
There are others who have been through this same
experience and doctors who are eager to help in
any way they can. Please note: If you have hereditary hemochromatosis and are pregnant, you will not have an NH baby. If you have hereditary hemochromatosis and plan to have children, you will not have an NH baby because of that diagnosis. NH is a separate condition which is not genetic like hereditary hemochromatosis (HH).
You can also find us on Facebook.
our web site for Neonatal Hemochromatosis (NH) at: