very special day in the history of the American Hemochromatosis
March 31, 1998 to March 31, 2014 by Sandra Thomas
Serving the public for 16 years....
everyone a Merry Christmas
Happy New Year in 2015!!
To Sandra Thomas Interview!!
Sandra Thomas, President/Founder, American Hemochromatosis
Blog Talk Radio on WRNW1 "Women's Radio Network"
on the Lisa Singer Show
who was interviewed on Monday, November
WRNW1 is committed to empower female professionals as
navigate through the pathways to
you read anything else on this website...
Here's Bottom Line Information to save you time and money:
Want answers now? Tired of wondering if you or a loved one has hereditary hemochromatosis?
answers to iron levels and genetic status quickly and
privately through these "direct access" companies:
genetic testing/Home test kit/Painless:
Gene Track (www.hemochromatosisdna.com) DNA Test Kit:
$195.00 + 20% discount=$156.00.
free number: 1-877-714-6356 (Request discounted
price of $156.00) Painless cheek brush kit
are sent by snail mail/email in 3 to 5 days/Tests for
This lab no longer offers DNA testing for hemochromatosis
but will again in the future
23andMe. (www.23andme.com) Test kit: $99/tests
three HH mutations using saliva sample.
lab will resume testing for HH mutations in the future
after approval by the FDA.
their web site for updates.
Iron storage levels (serum iron, TIBC, & serum ferritin):
(Used for diagnosis of hemochromatosis or monitoring the diagnosed patient)
HealthCheckUSA (www.healthcheckusa.com) Toll free number: 1-800-929-2044.
doctor's order needed--you use a local lab /needle draw
name and address of lab from HealthCheckUSA rep
note that HealthCheckUSA no longer offers the HFE mutation
DNA test kit
recommend Gene Track for genetic testing now. Please
see their information above.
you are searching for a diagnosis (or to rule out hemochromatosis),
or monitoring your iron levels,
tests will help you get the answers you need. AHS
would be pleased to discuss your results with
and help you know what questions to ask your doctor.
(AHS does not receive any funding from these companies for referring patients to them).
Please note that these labs are not a substitute for professional medical care but can provide a quick, confidential, and accurate assessment of your iron storage levels and
DNA genetic status which you can share with your doctor
if you wish.
If you have any questions about these labs please call AHS at: 407-829-4488.
It all started 16 years ago...
Josephine Bogie Thomas
She was the inspiration for founding the
American Hemochromatosis Society
Sandra Thomas, Founder/President
16th Anniversary of Service to the Public!!
31, 1998 to March 31, 2014
(See the President's Message at the bottom
of the page for a history of AHS)
you for putting your trust in the American
Hemochromatosis Society (AHS)
us (and "Like" us) on Facebook!
the 1,570+ visitors to our page on Facebook!
AHS New Address!!:
(In the "old
days" (circa 1998), the American Hemochromatosis Society
(AHS) received and sent out a lot of mail.
with the Internet and Facebook, we get few requests
for information by mail, and we rarely use the
service. Nevertheless, we do have an address, and that
address has now been changed to:
Hemochromatosis Society (AHS)
P.O. Box 950871
Lake Mary, Florida 32795-0871 U.S.A.
Most communcation with our society is through email,
(firstname.lastname@example.org), or facebook (www.facebook.com/HereditaryHemochromatosis),
or telephone, 407-829-4488.
We're here to help in any way we can.
to Annie's Mailbox for publishing Sandra Thomas' letter
hemochromatosis on Sunday, November 2nd!
have received calls from all over the USA!!
a trip down memory lane... Old AHS Archives!!
In Loving Memory...
The American Hemochromatosis Society extends its sincere sympathy
the family, friends, and co-workers of
B. "Brian" Gillespie
Gillespie --- Bernard B. “Brian” of West Roxbury,
Suddenly October 21, 2014. Age 62. Beloved son of the
late Bernard “Barney” and Cecilia F. “Sheila”
(Kearney) Gillespie. Loving brother of Mary Ellen McPhee
and her husband Joseph of Northborough, Philip and his
wife Maura of Dedham,Cecelia “Fran” Saroglou
and her husband George of Medfield, Patrick and his wife
Ellen of West Roxbury and the late John Michael Gillespie.
Devoted uncle of Bernie and Lori Saroglou, Sheila and
Jason Blydenburgh, Bridget Gillespie, Meghan Gillespie,
Michaela Gillespie and Emma Gillespie. Great Uncle of
Tyler, Camryn and Elizabeth.
Funeral from the Robert J. Lawler and Crosby Funeral Home
1803 Centre St., West Roxbury, on Monday, Oct. 27, at
10:00 am. A Mass of Christian Burial will be celebrated
in St. Theresa of Avila Church at 11:30am. Relatives and
friends are invited to attend. Interment St. Joseph Cemetery.
Member of Local 275 Carpenters Union.
In lieu of flowers donations may be made in Brian’s
name to www.americanhs.org American Hemochromatosis Society
“AHS”, PO Box 950871, Lake Mary, FL 32795-0871.
Lawler and Crosby Funeral home
the full obituaries in the Memorial Photo Gallery)
International BioIron Society(IBIS)
For more information: www.bioiron.org
Josephine Bogie Thomas (left) & her daughter, Sandra Thomas, on the
balcony of their apartment in North Hills, Pittsburgh, Pennsylvania
in November 1998, six months before Josephine died from hereditary hemochromatosis on May 13th, 1999.
AHS Remembers 7 Years Later...August 27, 2007 to August 27, 2014
Board member and major benefactor of the
American Hemochromatosis Society
October 5, 1914 to August
Dad, you are missed every day. You did so much to help the cause for awareness of
hereditary hemochromatosis, the disease which took your dear wife, Josephine, from you. You cared for her tenderly, and stood by her without exception, tirelessly,
patiently, you were there for her from diagnosis in 1983 to her death in 1999. You set
a wonderful example of devotion and dedication. One which I easily and gladly followed when it was your turn to face the final chapter of your life. You and mom were the best, and are dearly missed. Thank you for all of the timeless life lessons you taught me.
(Joe was the father of AHS president
and founder, Sandra Thomas and husband of 59 years to
Josephine Bogie Thomas, inspiration for the founding of this organization)
Joseph Burghard Thomas Obituary
See In Memoriam tribute in Orlando Sentinel on August 27, 2013
Sandra Thomas and her father, Joe B. Thomas
Books on Hemochromatosis....
Guide to Hemochromatosis
Guide to Hemochromatosis, which is chock full of important information about hemochromatosis, can be ordered through www.amazon.com
or any major book store, or go to: www.irondisorders.org
Guidebook on Hereditary Hemochromatosis
Medifocus has published an excellent rescource and information
guide for patients and families concerning Hereditary
the AHS Neonatal Hemochromatosis Information Center (NH) Site
(left) has Neonatal Hemochromatosis (NH).
AHS sponsors a web site for this rare newborn
iron disease. Learn more about NH in newborns
and the exciting new treatment which offers new
hope for pregnant women who have already had an
NH baby in the past.
have an NH baby, please email or call us at 407-829-4488
so you aren't going through this experience alone.
There are others who have been through this same
experience and doctors who are eager to help in
any way they can. Please note: If you have hereditary hemochromatosis and are pregnant, you will not have an NH baby. If you have hereditary hemochromatosis and plan to have children, you will not have an NH baby because of that diagnosis. NH is a separate condition which is not genetic like hereditary hemochromatosis (HH).
You can also find us on Facebook.
our web site for Neonatal Hemochromatosis (NH) at: